Rare Disease Summit

Neurofibromatosis (NF) is a genetic disorder that affects the development and growth of nerve cell tissues. There are three types of neurofibromatosis: NF1, NF2, and schwannomatosis. NF1 is the most common type and affects about 1 in every 3,000 people worldwide.

In India, there is limited information available on the prevalence of neurofibromatosis. However, it is believed that the incidence of NF1 is similar to that in other countries. NF2 and schwannomatosis are rarer types of neurofibromatosis, and their incidence in India is not well-documented.

Due to the lack of awareness and resources in India, many individuals with NF are often undiagnosed or misdiagnosed. There is a need for increased awareness and education among healthcare professionals and the general public about neurofibromatosis to improve early diagnosis and management of the condition.

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