Profile Details
Purva Mittal
Regional Coordinator
Organization for Rare Diseases India (ORDI), India.
Purva Mittal serves as a regional coordinator with the Organization for Rare Diseases India, a national patient-advocacy organization dedicated to improving the lives of individuals and families affected by rare diseases in India. In this role, she contributes to advancing ORDI’s mission of strengthening awareness, advocacy, and patient support systems for the country’s large but often underserved rare disease community.
As a regional coordinator, Mittal plays an important role in connecting patients, caregivers, healthcare professionals, and advocacy groups within the rare disease ecosystem. Her work focuses on facilitating regional engagement, supporting awareness initiatives, and strengthening collaborations between patient communities, medical experts, and policymakers. Through these efforts, she helps amplify the voices of rare disease patients and promote better access to diagnosis, treatment, and long-term care resources.
The organization she represents, ORDI, was established as a patient-centered non-profit platform dedicated to addressing the unique challenges faced by individuals living with rare diseases in India. The group works to improve early diagnosis, expand treatment access, support research, and influence national health policy through partnerships with healthcare providers, research institutions, and government stakeholders.
Mittal’s engagement with ORDI reflects a broader commitment to public health advocacy and community mobilization. By supporting regional outreach initiatives, educational programs, and stakeholder collaborations, she contributes to building stronger support networks for rare disease patients and their families. Her work helps drive greater public awareness of rare diseases—conditions that collectively affect millions of people in India but often remain under-diagnosed and under-resourced within the healthcare system.
Through her advocacy and coordination efforts, Purva Mittal continues to support ORDI’s goal of ensuring that people living with rare diseases receive timely diagnoses, appropriate treatment, and equitable healthcare opportunities while helping build a more informed and compassionate healthcare ecosystem for rare disease communities across India.
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