speakers – Rare Diseases Action Summit

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HW Council, a not-for-profit organisation working towards creating awareness and advocacy for a healthier, happier world. With the core belief that health is everyone’s responsibility, IHW Council initiatives get everyone talking about health at the national and international level. It is our guiding philosophy that focused, dedicated efforts which impact areas related to health should be recognized to inspire more hands and more initiatives that can contribute towards the making of a healthy nation.

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Past Speakers

Hon'ble Minister of State for Social Justice and Empowerment

Government of India

Hon’ble Member of Parliament (Rajya Sabha) & Chairperson

Indian Medical Parliamentarians’ Forum, India.

Assistant Director General (ADG), Directorate General of Health Services

Ministry of Health & Family Welfare, Government of India.

Country Medical Director

Medical Affairs, AstraZeneca

Founder and CEO

Nucleome Informatics Pvt Ltd

Co-Founder & Director - Patient Advocacy

Cure SMA Foundation of India

Director

RS Associates

Scientist-E

Indian Council of Medical Research (ICMR), New Delhi, India.

Emeritus Scientist, Former Professor & Head – Department of Pediatrics (Division of Genetics)

Indian Council of Medical Research (ICMR), All India Institute of Medical Sciences (AIIMS)

Director Professor, Department of Paediatrics & Head,

Maulana Azad Medical College & Lok Nayak Hospital, New Delhi

Country Lead and Managing Director & General Manager, Pharma,

Sanofi India Limited, India.

Director of Pediatrics & Senior Consultant – Pediatric Nephrology

Indraprastha Apollo Hospitals, New Delhi, India.

Former Director & CEO – AIIMS Bhopal; Director Medical Research

Aarupadai Veedu Medical College (Vinayaka Mission’s Research Foundation), Pondicherry, India.

Professor – Pediatrics & In-Charge, Genetic Clinic and Pediatric Genetics Research Laboratory

Seth G.S. Medical College & KEM Hospital, Mumbai, India.

Associate Professor – Department of Pediatric Medicine

JK Lone Hospital, SMS Medical College, Jaipur, India

Director – Patient Academy for Innovation and Research (PAIR) & CEO

DakshamA Health and Education

Head – Diagnostics Division

Centre for DNA Fingerprinting and Diagnostics (CDFD), Hyderabad, India.

Vice President – Genomics

Agilus Diagnostics Ltd. India.

Child Neurology Division & Coordinator – DM Paediatric Neurology Programme, Department of Pediatrics

All India Institute of Medical Sciences, New Delhi

Associate Secretary General

Indian Pharmaceutical Alliance (IPA), India.

Founder Director – Patient Advocacy,

Cure SMA Foundation of India, Hyderabad, India.

Co-Founder & Director

Rare Diseases India Foundation (RDIF), India.

Lead – Medical & Precision Oncology

Apollo Hospitals Navi Mumbai

Regional Coordinator

Organization for Rare Diseases India (ORDI), India.

Professor – Pediatrics

All India Institute of Medical Sciences (AIIMS), Bhopal, India.

Associate Consultant – Institute of Medical Genetics & Genomics

Sir Ganga Ram Hospital, New Delhi, India.

Former Business Unit Head – Rare Diseases

Takeda